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Please use the form below to become a member or update the contact details we hold for you.

The General Data Protection Regulation (GDPR) was designed to enable individuals to better control their personal data. It came into effect on 25th May 2018 and affected the way we could contact you. After this time, if you still wanted to receive our newsletters, leaflets and information on our events, we needed your explicit consent.

We supported these important legal changes and wanted to make sure that you only received information from us that you want to received, and in the ways that you like. So, if you didn’t opt in during the months that followed, we were obliged to delete your details. However, it is very easy to set them back up again. Simply complete the form below and we will add you back on to our database to receive BPA information.

Complete the form below to update your details

Privacy Policy

This policy explains when and why we collect personal information.


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All BPA communicationsNewslettersPatient events/informationFundraising/awareness events


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I want to Gift Aid my donation and any donations I make in the future or have made in the past 4 years to the British Porphyria Association (Registered Charity No. 1089609). I am a UK taxpayer and understand that if I pay less Income Tax and/or Capital Gains Tax than the amount of Gift Aid claimed on all my donations in that tax year it is my responsibility to pay any difference. (I will advise the BPA if my tax status, name or address changes.)