The AGM of the British Porphyria Association was held on Sunday 24th October 2004 at Shirley Methodist Church , Birmingham .
There is a considerable change this year to the committee of the BPA, so we voted in the new committee.
John Chamberlayne (chair@porphyria.org.uk) was voted as the new chairman; and
Leigh Drake (secretary@porphyria.org.uk) as the new correspondence secretary.
We also elected the following officers, unopposed:
Ann Newton (treasurer@porphyria.org.uk) as Treasurer,
Kirstine Chamberlayne as minutes secretary,
Sarah Clark as PR & marketing, and
Karen Harris to remain manning the help-line.
It was announced that subscriptions would be collected from all members for the year at the beginning of each year. All members will be receiving a letter in January.
There was discussion regarding getting one’s GP to refer porphyria patients on to specialists.
We were pleased to welcome Dr Alex Holme, who is currently working on research into liver disease in EPP patients. He gave an interesting talk about his research. Following that we presented him with a cheque for £2000 towards his research.
Following the formal AGM there were informal discussions and a chance to talk to other members.
