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Three speech bubbles (red, blue and green) display the words: “We want to hear from you!”. Red text underneath reads: “SURVEY: What is it like to live with cutaneous porphyria?” In the bottom left corner is a red asymmetrical cloud-like shape, and in the bottom right corner is the University of Dundee logo (a blue and white illustrated shield with “University of Dundee” written next to it).

TELL US ABOUT YOUR EXPERIENCE WITH SKIN PORPHYRIA

Do you have one of the skin porphyrias & 15-20 minutes to spare? Professor Fabio Sani at the University of Dundee wants to hear from you!

Help improve care for cutaneous porphyria and advance understanding of what it’s really like to live with rare disease by taking part in this important survey.

All data will be collected anonymously and stored in a secure password computer, with only the lead researcher having access to it. No identifying information will be collected. Participation is voluntary and can be withdrawn at any time.

Click here to find out more and complete the survey.

TELL US ABOUT LIVING WITH A LONG-TERM CONDITION

Do you want the chance to win £100 worth of vouchers?

Researchers at King’s College London are carrying out a study to understand people’s experiences and emotional difficulties when living with a long-term condition.

To take part, participants must:

  • Have an email address
  • Be 18 and over
  • Be based in the UK
  • Have a long-term health condition, e.g. porphyria, asthma, diabetes, heart disease.

To find out more and complete the survey, visit the LTC study info page.

Infographic showing sign up details for the Living with a long term condition study. Text reads: Do you have a Long-Term Physical Health Condition? King’s College London is testing a new questionnaire looking at mood in people living with long-term physical health conditions. 1. Complete online screening and online questionnaire (20 mins). 2. After 1 week, complete online questionnaire 2 (10 mins). A chance to win 1 of 5 x £100 vouchers. Any questions? Get in touch at LTC-study@kcl.ac.uk.