One of our latest attempts to keep patients informed and to help with management of certain aspects of porphyria is a series of straightforward but informative factsheets.

The following factsheets are finalised and we have further topics currently in production. Please let us know if there is a subject you think we can help you with.



Pregnancy in acute porphyria

Using Hormone Replacement Therapy (HRT) in Porphyria Cutanea Tarda (PCT)