International organisations

The following patient organisations have websites in English:

The American Porphyria Foundation has an extensive website, including a section for medical staff:

The Australian Porphyria Association is at

The following sites have web in their own language:

Swedish Porphyria Association:

Norway: Norsk Porfyriforening:

Porphyria Association Denmark:

Italian Porphyria Association:

Dutch EPP Foundation:

EPP Germany (who also cover other types of porphyria)

Porphyria Association of Poland:

France: Association Française des Malades Atteints de Porphyries:

Spain: Asociación Española de Porfiria:

Porphyria information in another language

HomeEpnet has lots of information on the porphyrias in a number of different languages: Dutch, German, French, Portuguese, Italian, Polish, Turkish, Swedish, Finnish, Norwegian and Slovenian, amongst others.

It is a great source of information for anyone travelling. It provides useful information on the testing laboratories and porphyria centres around the world, and is an ideal reference point for medical professionals as well as patients.