Fundraising events

Our supporters take part in events all over the country to raise funds for the BPA, for which we are extremely grateful. We have been truly astonished by the amazing fundraising efforts of our supporters over recent years.

Do you feel inspired to take part in an active challenge to raise valuable funds to help support people with porphyria? Learn about our Active 21 campaign.

You could take on a walk, run, cycle or triathlon. Or you might have something more daring in mind – maybe a sky dive or abseil.

We coordinate a number of official places each year in some of the most popular sporting events. Register your interest today on helpline@porphyria.org.uk or 0300 30 200 30.

If an active/endurance event isn’t your style, you might have other plans to raise funds. Please see our fundraising pack for more hints and tips on raising funds.

Get active

Could you join Team BPA for the Great North Run 2021? The 40th anniversary year is set to be an amazing event and places are in high demand due to no public ballot this year.

Or what about running the Virtual London Marathon on Sunday 3 October 2021?  Could you run, walk or hike 26.2 miles within the designated 24 hours from 00:00 to 23:59 on Sunday 3 October, from anywhere in the world… All whilst fundraising for the BPA?

If you’re interested in any of these places, please contact helpline@porphyria.org.uk or 0300 30 200 30 – places will go on a first come, first served, basis. Or contact us to register your interest for an event in the future.

Future events

    Your support is invaluable

    Why is it necessary to raise funds?

    Without the people who support us by raising funds we would be unable to provide leaflets and vital support to our patients, provide a helpline, help with medical research projects, or push forwards with education.

    Who can be involved?

    Anyone and everyone can be involved in some way, no matter what age or abilities they have.

    How much work is involved?

    You can make your own choices as to how much time and effort you are able to put in to your fund raising project. You may find that your company or school will be pleased to help you with an event, for example by allowing a ‘dress down’ day, or sponsored event.

    How do I get started?

    Have a look at our fundraising pack for a list of suggestions, you will be surprised at how many things that you could do.

    What help can the BPA offer to fundraisers?

    We can advertise your event on our events page and may be able to offer other practical advice.

    Please see our 2017 fundraising pack for more guidance on both large-scale and small-scale events, or our sponsorship pack for sporting and sponsorship events. Our sponsor forms contain all the information your supporters will need to make gift aid declarations.  We may also be able to provide merchandise for the event. Please let us know if you need our help.

    What's in it for me?

    You will no doubt have a great deal of fun, you might meet new people and forge new relationships, and you will have the satisfaction of knowing that you are helping the British Porphyria Association to continue its work helping patients and their families.

    Jeans for Genes day

    Jeans for Genes has invited rare diseases charities to help share their well-known brand and raise awareness together. It is a great way to bring a whole school or workplace together and raise money for Genetic Disorders UK and the BPA. The day invites people to leave suits and uniforms at home and wear jeans in return for a £1 donation.

    Sign up for a free fundraising pack. Don’t forget to choose the BPA as your affiliated genetic disorders charity, so that we get 50% of any income raised.