Fundraise for us

We’re delighted that you are thinking about fundraising for the BPA and contributing to our mission to support and educate patients, relatives and clinicians about porphyria. Our supporters take part in events all over the country to raise funds, for which we are extremely grateful.

There are many different ways you can raise money for the BPA. Want to run a half marathon, or raise money for charity through your wedding? Whether you’re doing it on your own, with friends and family, or as part of a school, work, university or faith group, the BPA can help.

Many multicoloured illustrated hands arranged into a circle shapeHere on our fundraising toolkit page, you’ll find everything you need to help you decide what charity fundraising event you’d like to do and how to do it, including:

  • Good fundraising ideas
  • Creating your online fundraising page and promoting your event on social media
  • Getting fundraising materials and BPA merchandise
  • Sending us the funds you raise
  • Information on what the BPA does (which you can use to help your fundraising efforts)
  • Frequently asked questions

If you have any questions, or need support with your event, please contact us at


Text on a green and white background reads: "Empowering porphyria patients. BPA Connect Alfresco. Residential Activity Weekend. 12-13 October 2024. Thorpe Woodlands, Thetford, Norfolk. Help us raise £20,000. A line of fir trees runs along the bottom of the image.This year, the BPA is concentrating its fundraising efforts on one clear goal: BPA Connect Alfresco 2024!

In other words, we are running a fundraising campaign that will enable us to take a group of young people with EPP on a residential activity weekend, so they can safely experience the mental and physical benefits of the great outdoors – and we need your help.

Help us reach our £20,000 target and empower young people with EPP to understand their condition, connect with others, build the confidence to take control, and share their story.

Sporting & physical activities

Photo montage of people fundraising for the BPA at different sporting events, all wearing BPA bibs and smiling at the camera.Find out more.

Purple for Porphyria Day

On a purple background, text reads "Wear Purple for Porphyria. Help us raise vital funds for families affected by rare disease. £1 donation." There are illustrations of purple jumpers, trousers and clothes dotted around the text. The BPA logo is in the bottom right corner.Find out more.

Other fundraising ideas

An illustrated yellow lightbulb is in the centre of a green background. In the bottom left and top right corners are illustrated pink brains, and in the top left and bottom right corners are illustrated multicoloured confetti.Find out more.


Browse our fundraising resource hub for how-to guides on all the practical parts of fundraising, such as creating an online fundraising page and how to send us your donations.


Read our top tips for making your fundraising event a success. Find out more.


On a yellow background with colourful multicoloured illustrated shapes, a photo of five smiling children lying down with their heads together in the centre.
Find out more.


The Duke of Edinburgh's Award logo on a light blue background. The logo shows the letters D and E in large print, with a crest and crown above them. Underneath the letters in small print reads: "The Duke of Edinburgh's Award".Coming soon…

Why fundraise? Fundraising FAQs

Why is it necessary to raise funds?

Without the people who support us by raising funds we would be unable to provide leaflets and vital support to our patients, provide a helpline, help with medical research projects, or push forwards with education.

Who can be involved?

Anyone and everyone can be involved in some way, no matter what age or abilities they have.

How much work is involved?

You can make your own choices as to how much time and effort you are able to put in to your fund raising project. You may find that your company or school will be pleased to help you with an event, for example by allowing a ‘dress down’ day, or sponsored event.

How do I get started?

Have a browse of our fundraising toolkit pages for ideas, you will be surprised at how many things that you could do.

What help can the BPA offer to fundraisers?

We can advertise your event on our events page and may be able to offer other practical advice.

Please browse these fundraising toolkit pages for more guidance on both large-scale and small-scale events. Our sponsor forms contain all the information your supporters will need to make gift aid declarations. We may also be able to provide merchandise for the event. Please let us know if you need our help.

What’s in it for me?

You will no doubt have a great deal of fun, you might meet new people and forge new relationships, and you will have the satisfaction of knowing that you are helping the British Porphyria Association to continue its work helping patients and their families.