We celebrated 1st June as Porphyria Awareness day.
The Canadian Porphyria Foundation have been celebrating 1st June in this way for several years, and from this year we are joining them.
We plan to raise the profile of porphyria via the media on this day.
Dr Stewart is organising an open day in Salford, Manchester
Venue: Humphrey Booth Lecture Theatre, Hope Hospital , Salford
Date and time: Wednesday June 1st 2005 11.00h-14.00h
• They are holding a joint educational meeting which aims to bring together patients, specialists and other healthcare professionals who deal with various aspects of the porphyrias to increase awareness and understanding.
• They will also be providing a tour of the Clinical Biochemistry Porphyrin Laboratory and the Photobiology Unit for patients and their families to show them aspects of the porphyria diagnostic and research work we carry out at Hope Hospital .
• For further information contact: Dr Felicity Stewart, Department of Clinical Biochemistry, Salford Royal Hospitals NHS Trust ( Hope Hospital ). Tel No 0161 206 4961 or e-mail felicity.stewart@srht.nhs.uk .