Porphyria Awareness Week 2021

Porphyria Awareness Week is a week-long international campaign for porphyria awareness. It is held in April each year and has a slightly different theme every year.

We’re very excited to announce our plans for Porphyria Awareness Week (PAW) 2021 with the campaign #LetsTalkPorphyria. There are lots of fun activities for you all to get involved in across the week.

We hope to build on the amazing engagement, awareness generation and education of PAW 2020 to bring the porphyria community together. As we are all still working and living in a slightly more virtual manner, our approach to PAW 2021 focuses on engagement and involvement from home and possibly school/work if permitted!

We hope to increase engagement and psychological support for our porphyria patients via a number of virtual and interactive Zoom sessions, to help you connect and interact more with others affected by porphyria! And, we hope that you will share your pictures of what you get up to for PAW across our social media platforms.


Places limited to 30 registrations for the acute, EPP/skin and family interactive sessions. Register now to avoid disappointment.

Places are unlimited for the social event / quiz night.

NEW BPA Merchandise

We’re delighted to be offering the opportunity to purchase various clothing items to promote porphyria awareness. So far, we have facemasks, hoodies and snoods available to purchase. We’ll be selling these items throughout the year, but if you would like any of them for Porphyria Awareness Week, please order by Tuesday 23 March at the latest! BPA merchandise.

Upload your pictures to win prizes via Facebook, Twitter or Instagram

Throughout the week, we will be asking you to upload pictures of what you get up to. For each activity you share pictures of, you will be entered into a prize draw to win various BPA merchandise, including hoodies, facemasks and a pain management book. So, the more you get involved, the better chance you have of winning a lucky prize!