In the summer of 2006 many of our members completed a questionnaire we sent them. The results were summarised the following year, and presented to porphyria medical experts, and at BPA meetings. A report of the results can be downloaded here.
Porphyria questionnaire
In the summer of 2006 many of our members completed a questionnaire we sent them. The results were summarised the following year, and presented to porphyria medical experts, and at BPA meetings. A report of the results can be downloaded here.