In June we had our first main meeting in Scotland, at Ninewells hospital, in Dundee, on Saturday 13th June. We had talks by Scottish porphyria experts, and a tour of the labs where porphyria tests are done for Scotland.
Archives
- Idle musings on sunscreens (by Claire Jarvis)
- Join #TeamBPA for the Virtual London Marathon 2023
- Sophia: Support for EPP patients
- Sophia: How you can feel comfortable during the summer months (when you haven’t had enough exposure in spring)
- Sophia: The Beginner’s Mind
- Sophia: Travelling with EPP – Apr’20
- Sarah and Matthew’s phototherapy adventure Jun’19
- Enjoying Winter: Our Top 5 Tips – Jan’19
- Every Cloud Nov’18
- December 2016
- Custom Van Show: 9th-10th September 2017
- International Porphyria Awareness Week (IPAW)
- 2017 Autumn Conference and AGM: Cardiff
- We need sporting fundraisers for 2017
- NAPS Scotland
- Update on Scenesse®
- International Patient Day – Bordeaux – 25 June 2017
- Autumn Conference and AGM 2016 – Peterborough – 1 October
- Open day 2016 – Salford
- Custom Van Show: 12-13 September 2015
- International Porphyria Patient Day in Düsseldorf, Germany, on Sunday 13 September
- Autumn Conference and AGM in London, on Saturday 24 October 2015
- Open Day in Leeds, on Friday 29 May 2015
- New Job Role for the BPA
- Ride London-Surrey 100 – 10 August 2014
- Custom Van Show: Weekend 13/14 September 2014
- Autumn Conference and AGM – 6 September 2014
- Annual Open Day – Cardiff – 7 June 2014
- Hellrunner: Hell Down South
- Ride London-Surrey 100 – August 2013
- South Downs Trekathon
- International Patient Conference
- Kings College Open Day
- Autumn Conference 2013
- Rachel and Kevin doing an Ironman
- Matthew Binns – The 3 Big Ones – Fundraising in 2012
- Running for Porphyria research
- Open Committee Meeting
- Autumn Conference 2012 in Cambridge
- Darnley Trail Challenge Fundraising Walk – Sunday 4th September 2011
- Hospital Open Day – June 2012
- Viewing this site
- National Porphyria Week
- AGM and Autumn Conference – 10 Sept 2011
- International Patient Support Conference
- International Patient Support Conference
- Open Committee meeting
- BPA calendar
- Meeting in Cambridge
- Autumn Conference and AGM 2010
- Charity walk
- Our first meeting in Scotland
- Autumn Conference and AGM 2009
- Committee meeting
- Hospital Open Day June 2008
- Open Committee Meeting June 2008
- Autumn Conference and AGM 2008
- Warning of Scam
- Report on Questionnaire
- Porphyria questionnaire
- AGM and half-day conference
- Open committee meeting Aug 2007
- OPEN DAY at Kings College Hospital
- Open committee meeting Jan 2007
- International Porphyria meeting in Rome
- International Porphyria meeting in Rome
- AGM, 2006
- Open committee meeting June 2006
- OPEN DAY at Cardiff Hospital
- BPA’s new logo
- Open committee meeting Feb 2006
- AGM, 2005
- Open Day at Hope Hospital , June 1st 2005
- Open committee meeting June 2005
- Porphyria Awareness Day
- Open committee meeting March 2005
- AGM, 2004
- Notice of AGM, 2004
- Climb Conference, 16th April
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