Contact us

Please contact us on our email helpline or telephone number and we’ll do our best to answer your queries and concerns as soon as possible.

Email: helpline@porphyria.org.uk

Our helpline number is 0300 30 200 30.

Calls are most likely to be answered between the hours of 10am and 2pm. The rest of the time there will be an answer phone in operation. Please leave a message and someone will get back to you.

This is not a 24/7 number. If you have an acute attack emergency, please contact the National Acute Porphyria Service (NAPS) 24/7 helpline number: 029 2074 7747.

Our registered address is:
British Porphyria Association
136 Devonshire Rd
Durham City
DH1 2BL

Registered Charity (UK) No.1089609

Comments or questions are welcome.