Who we are

The British Porphyria Association (BPA) is a national charity for people with porphyria.

It was established in 1999 and became a registered charity in 2001. Until 2015 the BPA was run solely by a committee of volunteers, but we now have paid administrators for a number of hours a week to support the volunteers with the workload.

The charity continues to grow and evolve and we currently have around 400 members. All of the different types of porphyria are represented in our membership, alongside many medical professionals too.