BITOPERTIN UPDATES

GIVOSIRAN UPDATES

Scenesse updates

CURRENT RESEARCH PARTICIPATION OPPORTUNITIES

Do you have EPP or XLP and an hour to spare?

Sciensus and Disc Medicine want to better understand how porphyria impacts your life via an online questionnaire – and is offering an £80 shopping voucher in exchange for your thoughts!

This opportunity is open to anyone with EPP/XLP in the UK aged 12 and over.

To find out more, download the participant information sheet.