Accurate information statement

The British Porphyria Association are in full support and endorse the ‘Accurate Information Statement’. This statement has been produced by the Global Porphyria Advocacy Coalition (GPAC) with the support of patient advocacy organisations from around the world (including the BPA) and with approval from international clinical and research networks, including the British and Irish Porphyria Network (BIPNET), the European Porphyria Network (Epnet), the American Porphyrias Expert Collaborative (APEX) and Porphyria South Africa.