Elizabeth

For the fourth year running, Ray Lancaster and Jenny Coombs are organising the Revolution Custom & Classic Van Show in Skegness, to raise funds for the BPA. Van owners and enthusiasts will be coming from all over the country to show off their custom vans. There will be entertainment and competitions for adults and kids! Starts at 10am each day.

The event will be held at the Pine Trees Leisure Park, Croft Bank, Skegness Lincolnshire, PE24 4RE (Tel: 01754 762949). http://www.pinetreesholidays.co.uk.

Anyone interested in helping with the event/a stall can contact Ray on 07799 392 771 or magicoazulcc@yahoo.co.uk. If any business or individual has a raffle prize that they would like to donate, then please let Ray know.

22 April 2017 – 29th April 2017

After discussions with the American Porphyria Foundation (APF) and the International Porphyria Patients Network (IPPN), we are joining them in holding an International Porphyria Awareness Week (IPAW) from 22 to 29 April 2017.  We are planning on suggesting a number of fundraising and awareness initiatives that you might like to become involved in. More details of these will be circulated in early 2017 via our website and Facebook page, as they become available.

We feel this will help strengthen the impact that we can have, not only on a local level, but on a global level too.

We will endeavour to highlight the plight of those struggling with this condition using the media, our member’s personal stories, fundraising events, conferences, and any other means that we can.

Members like YOU, can help us to do this! If you have any ideas for awareness, publicity or fundraising that you would like to explore with the BPA, please do not hesitate to get in touch.

Money raised can be paid through Just Giving or cheques should be sent, with details of your event, to The Treasurer, British Porphyria Association, Rothlea House, 7-8 Quarry Lane, Butterknowle, Bishop Auckland, DL13 5LL.

The BPA have a number of places in some very popular sporting events in 2017.  Please let any of your friends or family know about these if you think they may be interested.  We can send you specific details to forward on, if desired. Please contact liz.gill@porphyria.org.uk for more details, or to express your interest in applying for one of these charity places.

Love running?

The BPA has eight remaining places available in the Great North Run on Sunday 10th September 2017 – this event is a half marathon (13.1 miles) from Newcastle to South Shields. The successful runners need to confirm that they will put the training in to complete the required distance and that they commit to raising £300 for the BPA.

The BPA has five places in the Great South Run on Sunday 22nd October 2017 – this event is a 10 mile run from Southsea to Portsmouth.  The successful runners need to confirm that they will put the training in to complete the required distance and that they commit to raising £300 for the BPA.

Love cycling?

We have one place available in the Ride London-Surrey 100 2017 to be held on 30 July 2017. Cyclists must confirm that they are happy to put in the training to be able to cycle 100 miles in 8.5 hours and that they commit to raising £750.00 for the BPA.  

These places will go on a first come, first served basis, so please contact the BPA, via: liz.gill@porphyria.org.uk or on 0300 30 200 30, ASAP to confirm your place.