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Ride London-Surrey 100 – August 2013

Norwich1The BPA would like to congratulate Ian Burrell and Glenn Blake for successfully obtaining the two BPA charity places for the ‘Ride London-Surrey 100’ which will be held in London on Sunday 4 August 2013.  Ian and Glenn are currently training hard, but they are also very excited to be part of this inaugural event. They will train together over the coming  months and they will then complete the 100 mile bike ride within the day – they are hoping for a time of around 7 hours!

The BPA wish Ian and Glenn the best of luck for the event, and we would like to thank them for all of their hard work and support – ‘Go Norwich Boys’.  Please support them by sponsoring their event – or just seeing how they are progressing – by visiting their JustGiving webpage:  Norwich2www.justgiving.com/thenorwichboys.

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South Downs Trekathon

Karen Harris is walking 26 miles in one day (18th May, 2013) for The British Porphyria Association “because she wants to help us to continue to help others”.

With her will be Sian Harris, Wendy Hicks and Candy Elsworth.

Please support her by sponsoring her on her JustGiving page:

www.justgiving.com/Pilatesgirls

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International Patient Conference

In May 2013, there is an International Patient Conference in Lucerne, Switzerland.  Quite a number of you came to the previous international patient day last year in Cardiff. We had very positive feedback about it.  If you fancy a holiday in Switzerland, why not come to this one-day conference, on 18th May 2013.  It will include talks by doctors on the latest information on porphyria, and talks by patients and patient organisations.

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Kings College Open Day

We are having a porphyria Open Day at Kings College Hospital, London, on Saturday 8th June 2013.  Our Open Days are always popular; and as usual this event will include talks on porphyria by clinicians for Kings, and also a tour of the porphyria testing laboratory

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Autumn Conference 2013

Our Autumn Conference in 2013 will be in Scotland for the first time.  It will be in Dundee, on Saturday 21st September 2013.  This will include our brief AGM, but with much more time given to talks by Scottish clinicians, and porphyria patients.

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