On 15th July 2012 Rachel and Kevin will be travelling to Switzerland to swim 2.4 miles, cycle 112 miles, and then run a full marathon, all within a 16 hour time limit !
They decided to try to raise some money for a good cause – the British Porphyria Association.
If you wish to support their fundraising for the BPA, go to Rachel and Kevin’s JustGiving page
Mathew Binns running the Marathon of the North
Mathew Binns has developed Binnsey’s Big 3! Matthew is planning these 3 events as a personal challenge and he decided that with all this sweat, pain and exhaustion he should try to raise some funds for the BPA. Porphyria is close to his family’s heart and Matthew hopes that his efforts this year to raise £1000 can go in some way to support the work of the BPA.
Matthew quotes: “It goes without saying that endurance events take a lot of time for training and a lot of effort to achieve, and I wouldn’t have achieved any of these results without the loving support of my family and in particular my beautiful wife, Kristina, who constantly ensures that I stick to my training plan and is always on hand to patch up my aches and pains. I couldn’t do it without you, Kris!”
Matthew Binns is completing the following ‘3 Big Ones’ in 2012:
Marathon of the North. 6 May 2012 done at the Stadium of Light, Sunderland
Epic Swim 15 July 2012 Ullswater, Cumbria
Vitruvian ½ Ironman 8 September 2012 Rutland Water, Rutland
If you would like to follow Matthew’s progress and support his fundraising activities, please see his JustGiving page
Amy Martin and Emily Gregory are fundraising for the Helen Gibbs trust fund into 
research for porphyria by running the Brighton half marathon!!!!
The half marathon is on 19 feb.
For more information, see the article about it in the Kenilworth weekly news.
If you would like to sponsor her, read the messages and show your support, click on the link below:
www.justgiving.com/thehelengibbstrustfund?ref=nf
Amy has been involved in the organising of the may ball to raise money for the Helen Gibbs Trust fund which supports the BPA.
We are holding an open committee meeting, in Doncaster in March.
It is on Saturday, 10th March 2012, at 2pm, in Scawsby Comunity Centre, Barnsley Rd, Scawsby, Doncaster.
Any BPA member is invited to join us.
We are holding our Autumn Conference next year in the historic and picturesque setting of Sydney Sussex College, Cambridge .
It is on Saturday, 27th October, 2012.
We will have registration and refreshments at 1.30 for a 2pm start.
The conference will include a brief AGM of the BPA.
Both skin and acute porphyrias will be covered.
We will have a clinical talk on EPP by Prof. Tim Cox, followed by one on National Commissioning for Porphyria, by Dr Penny Stein. Both are porphyria experts from Addenbrookes Hospital, Cambridge.
We will also have shorter talks by patients, on their experiences with porphyria;
Then we will havea question and answer session, with both BPA patients, and porphyria clinical specialists on the panel.
We will finish with tea and coffee, and informal chats, between 4.30 and 5pm.
We hope many of you will be able to come to this friendly and informative meeting.
We will be using the William Mong building in Sydney Sussex College
We will have a clinical talk on EPP by Prof. Tim Cox, followed by one on National Commissioning for Porphyria, by Dr Penny Stein.
