Newsletter

Archives

• Idle musings on sunscreens (by Claire Jarvis)
• Join #TeamBPA for the Virtual London Marathon 2023
• Sophia: Support for EPP patients
• Sophia: How you can feel comfortable during the summer months (when you haven’t had enough exposure in spring)
• Sophia: The Beginner’s Mind
• Sophia: Travelling with EPP – Apr’20
• Sarah and Matthew’s phototherapy adventure Jun’19
• Enjoying Winter: Our Top 5 Tips – Jan’19
• Every Cloud Nov’18
• December 2016
• Custom Van Show: 9th-10th September 2017
• International Porphyria Awareness Week (IPAW)
• 2017 Autumn Conference and AGM: Cardiff
• We need sporting fundraisers for 2017
• NAPS Scotland
• Update on Scenesse®
• International Patient Day – Bordeaux – 25 June 2017
• Autumn Conference and AGM 2016 – Peterborough – 1 October
• Open day 2016 – Salford
• Custom Van Show: 12-13 September 2015
• International Porphyria Patient Day in Düsseldorf, Germany, on Sunday 13 September
• Autumn Conference and AGM in London, on Saturday 24 October 2015
• Open Day in Leeds, on Friday 29 May 2015
• New Job Role for the BPA
• Ride London-Surrey 100 – 10 August 2014
• Custom Van Show: Weekend 13/14 September 2014
• Autumn Conference and AGM – 6 September 2014
• Annual Open Day – Cardiff – 7 June 2014
• Hellrunner: Hell Down South
• Ride London-Surrey 100 – August 2013
• South Downs Trekathon
• International Patient Conference
• Kings College Open Day
• Autumn Conference 2013
• Rachel and Kevin doing an Ironman
• Matthew Binns – The 3 Big Ones – Fundraising in 2012
• Running for Porphyria research
• Open Committee Meeting
• Autumn Conference 2012 in Cambridge
• Darnley Trail Challenge Fundraising Walk – Sunday 4th September 2011
• Hospital Open Day – June 2012
• Viewing this site
• National Porphyria Week
• AGM and Autumn Conference – 10 Sept 2011
• International Patient Support Conference
• International Patient Support Conference
• Open Committee meeting
• BPA calendar
• Meeting in Cambridge
• Autumn Conference and AGM 2010
• Charity walk
• Our first meeting in Scotland
• Autumn Conference and AGM 2009
• Committee meeting
• Hospital Open Day June 2008
• Open Committee Meeting June 2008
• Autumn Conference and AGM 2008
• Warning of Scam
• Report on Questionnaire
• Porphyria questionnaire
• AGM and half-day conference
• Open committee meeting Aug 2007
• OPEN DAY at Kings College Hospital
• Open committee meeting Jan 2007
• International Porphyria meeting in Rome
• International Porphyria meeting in Rome
• AGM, 2006
• Open committee meeting June 2006
• OPEN DAY at Cardiff Hospital
• BPA’s new logo
• Open committee meeting Feb 2006
• AGM, 2005
• Open Day at Hope Hospital , June 1st 2005
• Open committee meeting June 2005
• Porphyria Awareness Day
• Open committee meeting March 2005
• AGM, 2004
• Notice of AGM, 2004
• Climb Conference, 16th April