Past events

We held a committee meeting of the BPA on 17th February, 2007, in Reading.
It started at 2pm, and finished by 6.00, after a buffet tea.

It was held at:      Wesley Methodist Church Hall
84 Queens Road,  Reading,   RG1 4BW

As well as the formal business, we will be giving a summary of the results of the questionnaire on acute porphyria attacks we sent out last year.   Also we will be showing the DVD on porphyria produced by the American Porphyria Foundation.  It covers all types of porphyria.

Following the meeting, there will be informal discussions and the opportunity to talk to other members.

If you wish to attend, please let us know.

The Italian Porphyria patients support group held an  International  Porphyria  Conference in Rome, on October 26th and 27th.

It was a very valuable meeting of patients, with talks by support groups, and medical experts. The conference languages were English and Italian.

Two of our committee attended, and will be reporting on it in a future newsletter.

The Italian Porphyria patients support group held an  International  Porphyria  Conference in Rome, on October 26th and 27th.

It was a very valuable meeting of patients, with talks by support groups, and medical experts. The conference languages were English and Italian.

Two of our committee attended, and will be reporting on it in a future newsletter.

We had our AGM on Saturday, 14th October 2006 at 2.30,
at Queen Mary’s Hospital, Sidcup, SE London.

We were pleased to welcome Dr Robert Sarkany, from St. Thomas’s Hospital. He is a national expert on the skin porphyrias. He gave a talk after the formal part of the AGM, and was then willing to answer questions.

After the AGM, and over food, there was chance for informal discussions with Dr Sarkany, the committee and other members.

We had a committee meeting of the BPA on 17th June, 2006 .
It started at 1pm, and finished at 6.30, after a buffet tea.

It was held at Buckden, near Cambridge
at:
Buckden Millennium Community Centre,
Burberry Road,
Buckden,
Huntingdon, Cambs,
PE19 5UY

The venue is just off the A1, south of Huntingdon. Turn east of the A1 at the roundabout in Buckden

Our committee meetings are open to all BPA members and their families.

We had Prof. Cox, a leading expert on porphyria to talk to us after the formal business. He gave an very informative talk lasting an hour, and answered questions from BPA members.