Past events

We are having a porphyria Open Day at Kings College Hospital, London, on Saturday 8th June 2013.  Our Open Days are always popular; and as usual this event will include talks on porphyria by clinicians for Kings, and also a tour of the porphyria testing laboratory

Our Autumn Conference in 2013 will be in Scotland for the first time.  It will be in Dundee, on Saturday 21st September 2013.  This will include our brief AGM, but with much more time given to talks by Scottish clinicians, and porphyria patients.

On 15th July 2012 Rachel and Kevin will be travelling to Switzerland to swim 2.4 miles, cycle 112 miles, and then run a full marathon, all within a 16 hour time limit !

They decided  to try to raise some money for a good cause – the British Porphyria Association.

If you wish to support their fundraising for the BPA, go to Rachel and Kevin’s JustGiving page

Mathew Binns running the Marathon of the North

Mathew Binns has developed Binnsey’s Big 3! Matthew is planning these 3 events as a personal challenge and he decided that with all this sweat, pain and exhaustion he should try to raise some funds for the BPA.  Porphyria is close to his family’s heart and Matthew hopes that his efforts this year to raise £1000 can go in some way to support the work of the BPA.

Matthew quotes: “It goes without saying that endurance events take a lot of time for training and a lot of effort to achieve, and I wouldn’t have achieved any of these results without the loving support of my family and in particular my beautiful wife, Kristina, who constantly ensures that I stick to my training plan and is always on hand to patch up my aches and pains.  I couldn’t do it without you, Kris!”

Matthew Binns is completing the following ‘3 Big Ones’ in 2012:
Marathon of the North.        6 May 2012   done at the  Stadium of Light, Sunderland
Epic Swim                              15 July 2012                Ullswater, Cumbria
Vitruvian ½ Ironman           8 September 2012     Rutland Water, Rutland

If you would like to follow Matthew’s progress and support his fundraising activities, please see his JustGiving page

Amy Martin and Emily Gregory are fundraising for the Helen Gibbs trust fund into research for porphyria by running the Brighton half marathon!!!!

The half marathon is on 19 feb.
For more information, see the article about it in the Kenilworth weekly news.

If you would like to sponsor her, read the messages and show your support, click on the link below:
www.justgiving.com/thehelengibbstrustfund?ref=nf

Amy has been involved in the organising of the may ball to raise money for the Helen Gibbs Trust fund which supports the BPA.