In the summer of 2006 many of our members completed a questionnaire we sent them. The results were summarised the following year, and presented to porphyria medical experts, and at BPA meetings. A report of the results can be downloaded here.
Porphyria questionnaire
In the summer of 2006 many of our members completed a questionnaire we sent them. The results were summarised the following year, and presented to porphyria medical experts, and at BPA meetings. A report of the results can be downloaded here.
AGM and half-day conference
Saturday, 6th October, 2007, in Cardiff
We had a half-day conference in University Hospital of Wales, Heath Park, Cardiff, CF14 4XN. It will be starting at 2.30
We had a brief AGM. Then there were talks on porphyria by Dr Mike Badminton, a leading UK expert on porphyria, and then Dr Ruwani Katugampola will be reporting on her research work on CEP which we are helping to fund.
There was then a question and answer session on both porphyria and the BPA , followed by a chance to talk to other people with porphyria, over a free buffet tea!
Open committee meeting Aug 2007
We held an open committee meeting of the BPA on the afternoon of 23rd June 2007, in Durham City.
It was at Elvet Methodist Church, Old Elvet, Durham, DH1 3HL,
and started at 2.30pm .
(Our apologies that a recent letter to our members gave the wrong date!)
OPEN DAY at Kings College Hospital
Saturday, 2nd June, 2007
Kings College Hospital hosted an Open Day on porphyria on Saturday June 3rd, in association with the British Porphyria Association.
It was held at King’s College Hospital, Denmark Hill, London SE5.
We started at 10.30, with talks in the morning. These were on the various types of porphyria and their testing. Following lunch we had a question and answer session; and then a tour of the labs for BPA members.
Previous open days have proved to be very popular, so did this one.