helpline: 0300 30 200 30
helpline@porphyria.org.uk

Events

Ride London-Surrey 100

We have two official places in the Ride London-Surrey 100 for 2019.

The Prudential Ride London is Britain’s biggest celebration of cycling. Follow ​in ​the ​tracks ​of ​the ​Olympic ​greats ​by ​taking ​part ​in ​this London 2012 legacy event.

The 100 mile route start at the Queen Elizabeth Olympic Park, offering a unique opportunity to ride on closed roads and soak up the electric atmosphere, eventually finishing on The Mall, just outside Buckingham Palace.

The BPA has a fundraising target of £600 for this event, and unlike some charities, no registration fee!

Register early to secure your place – contact liz.gill@porphyria.org.uk or 0300 30 200 30.

Please see the Ride London website for further details of the requirements for riders. www.prudentialridelondon.co.uk/events/100/rider-info/.

Already have a place? If you manage to secure a ballot place, we’d love to welcome your support, and you get to set your own fundraising target.

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Committee Meeting

Meeting to Discuss Recent Progress

Agenda

1.      Apologies for absence

2.      Minutes of last committee meeting (30th Sept)

3.      Meetings

a.       Meeting Cardiff 7 Oct. 2017

b.      Skype meetings

c.        Bordeaux (25 June 2017)

d.      Other international contacts

e.      2018 meetings

f.        Other meetings

4.      Research

a.       Scenesse Approval

b.      siRNA

5.      Letter to members

6.      Newsletter

7.      Leaflets

8.      Finances

a.       Restricted funds

9.      Fundraising / Publicity

10.  Helplines

11.  Websites / Social Media

12.  Correspondence

13.  AOB

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