Help with health costs
For those patients who need regular prescriptions and/or need to repeatedly visit a porphyria specialist, the costs can be expensive. If you are on a low income, you may be able to get help with these and other costs, by completing form HC11. Please see the following websites for further information: http://www.nhsbsa.nhs.uk/792.aspx
For those that do not qualify, if you will need more than three prescription items in three months, or more than thirteen items in twelve months, a sensible way to approach this is to get a pre-payment certificate (PPC). For more information see: http://www.nhsbsa.nhs.uk/HealthCosts/1127.aspx
Those with complex health conditions often have further needs too. Please see our specific leaflets on benefits and concessions. One for the acute porphyrias and one for EPP.