Do you have EPP or XLP and 30 minutes to spare? A biotech company studying a potential treatment option for the EPP and XLP community wants to hear from you!
An electronic survey will be conducted for people living with EPP or XLP to understand their expectations, opinions, and preferences regarding clinical trial participation. The responses will provide the company with helpful information on how they can best support the community through effective and appropriate research activities.
This 15-question survey should take approximately 30 minutes.
The only requirement to participating in this survey is to be over the age of 18 and diagnosed with EPP or XLP.
The closing date is 1 December 2024.
To complete the survey, visit www.surveymonkey.com/r/ClinicalTrialsEnglish.
