Factsheets

One of our latest attempts to keep patients informed and to help with management of certain aspects of porphyria is a series of straightforward but informative factsheets.

The following factsheets are finalised and we have further topics currently in production. Please let us know if there is a subject you think we can help you with.

About the porphyrias

Insurance

Portacaths

Pregnancy in acute porphyria

Using Hormone Replacement Therapy (HRT) in Porphyria Cutanea Tarda (PCT)

Sunscreens update – Summer 2024

Light Sensitivity: Employer’s Information Card

Light Sensitivity: Red Flags Card for GPs

Light Sensitivity: Teacher’s Information Card