Factsheets

One of our latest attempts to keep patients informed and to help with management of certain aspects of porphyria is a series of straightforward but informative factsheets.

The following factsheets are finalised and we have further topics currently in production. Please let us know if there is a subject you think we can help you with.

About the porphyrias

Insurance

Portacaths

Pregnancy in acute porphyria

Using Hormone Replacement Therapy (HRT) in Porphyria Cutanea Tarda (PCT)

Using Hormone Replacement Therapy (HRT) in the Acute Porphyrias

Sunscreens update – Summer 2024

Light Sensitivity: Employer’s Information Card

Light Sensitivity: Red Flags Card for GPs

Light Sensitivity: Teacher’s Information Card