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May 23, 2019
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Robert Dawe
January 10, 2019
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Archives
Idle musings on sunscreens (by Claire Jarvis)
Join #TeamBPA for the Virtual London Marathon 2023
Sophia: Support for EPP patients
Sophia: How you can feel comfortable during the summer months (when you haven’t had enough exposure in spring)
Sophia: The Beginner’s Mind
Sophia: Travelling with EPP – Apr’20
Sarah and Matthew’s phototherapy adventure Jun’19
Enjoying Winter: Our Top 5 Tips – Jan’19
Every Cloud Nov’18
December 2016
Custom Van Show: 9th-10th September 2017
International Porphyria Awareness Week (IPAW)
2017 Autumn Conference and AGM: Cardiff
We need sporting fundraisers for 2017
NAPS Scotland
Update on Scenesse®
International Patient Day – Bordeaux – 25 June 2017
Autumn Conference and AGM 2016 – Peterborough – 1 October
Open day 2016 – Salford
Custom Van Show: 12-13 September 2015
International Porphyria Patient Day in Düsseldorf, Germany, on Sunday 13 September
Autumn Conference and AGM in London, on Saturday 24 October 2015
Open Day in Leeds, on Friday 29 May 2015
New Job Role for the BPA
Ride London-Surrey 100 – 10 August 2014
Custom Van Show: Weekend 13/14 September 2014
Autumn Conference and AGM – 6 September 2014
Annual Open Day – Cardiff – 7 June 2014
Hellrunner: Hell Down South
Ride London-Surrey 100 – August 2013
South Downs Trekathon
International Patient Conference
Kings College Open Day
Autumn Conference 2013
Rachel and Kevin doing an Ironman
Matthew Binns – The 3 Big Ones – Fundraising in 2012
Running for Porphyria research
Open Committee Meeting
Autumn Conference 2012 in Cambridge
Darnley Trail Challenge Fundraising Walk – Sunday 4th September 2011
Hospital Open Day – June 2012
Viewing this site
National Porphyria Week
AGM and Autumn Conference – 10 Sept 2011
International Patient Support Conference
International Patient Support Conference
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BPA calendar
Meeting in Cambridge
Autumn Conference and AGM 2010
Charity walk
Our first meeting in Scotland
Autumn Conference and AGM 2009
Committee meeting
Hospital Open Day June 2008
Open Committee Meeting June 2008
Autumn Conference and AGM 2008
Warning of Scam
Report on Questionnaire
Porphyria questionnaire
AGM and half-day conference
Open committee meeting Aug 2007
OPEN DAY at Kings College Hospital
Open committee meeting Jan 2007
International Porphyria meeting in Rome
International Porphyria meeting in Rome
AGM, 2006
Open committee meeting June 2006
OPEN DAY at Cardiff Hospital
BPA’s new logo
Open committee meeting Feb 2006
AGM, 2005
Open Day at Hope Hospital , June 1st 2005
Open committee meeting June 2005
Porphyria Awareness Day
Open committee meeting March 2005
AGM, 2004
Notice of AGM, 2004
Climb Conference, 16th April
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